How I taught my ‘Who’ to type.

In January of this year, my ‘Who’, Fraser, was at a point in his life where frustration at his lack of ability to communicate, was causing him and us, an incredible amount of stress. All he wanted was to look things up on Google and Youtube, but he couldn’t always tell us what it was. He has a limited vocabulary, and sometimes he would say things like ‘Nemo’, if he wanted to look at Finding Nemo. He could say ‘Tigger’ if he wanted to look up ‘The Tigger Movie’, but there were things he wanted to look up that we simply couldn’t work out. You can imagine how upset he became, repeating something over and over, that we couldn’t understand. At times he would just sit and cry. It was utterly heartbreaking, seeing him so distressed. So, I thought, why not try to teach him to type? I had actually tried a few years before, but he had not been ready and/or willing. We had nothing to lose if it didn’t work, but as it turns out, it miraculously did. Here’s what I did…

The first thing I tried at my first attempt a few years ago, was to lock the computer with a password, which was his name. Whenever he wanted to use it, he had to type in F R A S E R. It was simply a matter of holding his pointer finger , and moving it on the keyboard from one letter to the next. Before too long, he was typing it in himself.

Fast forward to 2014…he remembered how to type his name, so I used the thing he was into at the time…’Toy Story 2′. I used the same simple process. I would hold his pointer finger and press each of the letters one by one, while saying the names of the letters, numbers and keys at the same time. T O Y SPACE S T O R Y SPACE 2 ENTER. Within a couple of hours he was doing it himself. We stood there in awe feeling proud and amazed which was an awesome feeling, but the look on his face eclipsed that by a mile. He looked proud of himself. Something that, as far as i’m aware, he’s never felt before. He also looked like he couldn’t quite believe that he made Toy Story 2 images come up on the screen. It was like the world had just opened up for him.

So from there I continued with different movies and things he was interested in. He began spelling them out loud, and when we asked him to spell some of the movie titles, he was verbally able to spell them for us. He developed a voracious appetite for books and the alphabet. He has got some books that he’s had since he was little, that we used to teach him to spell every day items (listed below). I would hold his finger on each letter and say it out loud, then say the whole word, then point to the picture and say the word again. Before long, he could spell every word in every book. He was coming along in leaps and bounds.

I spoke to his teacher at his special school about what we were doing. She asked me if we wanted her to persevere with trying to get him to learn to hand write or if we wanted her to use that time to build on his typing. He is never going to write, so I jumped at the chance, so now he does typing at school instead. He also has a sentence written out about his day, he has a copy of the sentence cut up into individual words, that he has to put back together.

The next thing I did, was to make him a dictionary of words that he likes to look up, the names of all the people in his family, food and drinks that he might like. He has now learned the words, and can spell all of them back to us. We have now progressed on to doing the same with the Magic 100 words. So far he has completed his golden and red words! The dictionary is simply words in categories, such as our names, movie titles, foods etc. I typed them up on the computer, printed them and put them into a display book.

When I look back at the journey that bought us to this point, there are a few things that I just happened to do right along the way! The first thing was to play vocabulary videos, from the time we worked out something was wrong. So from the time he was almost 2, he was watching them and enjoyed them on a daily basis. The other thing was the word books I mentioned previously. We would go through the words and if we could, would show him a real item to match. For example, if the word was ‘shoe’, I would show him a real shoe. If the word was ‘comb’ I would show him a comb. If possible, I tried to buy items that closely matched the pictures. I did the same thing with the vocabulary videos. I also had alphabet books that I used. I had a variety from the local bookstore.

I am happy to report that he is still continuing to progress. He has an iPad, so he sometimes looks things up that he wants (he somehow manages to find things on youtube, by just touching links that he sees). He will pause on the title screen, then bring the iPad to the computer and copy the writing from the screen into the search engine onto the computer!! These gadgets are opening up a whole new world.

My sister and I have created an app called ‘Emotion Fonts’, that allows children (and adults) to select a font that represents and emotion, such as anger (bold black font), happy (apple green type) and sad (light blue soft looping font), to allow communication and intent to be clearer for everyone. The app can be used as a little whiteboard, or you send your message via email, Facebook and Twitter which we hope will help teenagers especially.

If you are reading this, you maybe looking for ways to help your child communicate better. I truly hope this information helps. The best advice I can give is to just give it a shot! Apart from some possible disappointment, there is not much to lose at all, and look at the gains you and your child might make.

Below are a list of items that I have found that have been particularly helpful. Apart from the Emotion Fonts app, I am not affiliated with any of these products. They are simply the ones that not only have worked for us, but that Fraser has actually loved and I highly recommend them.

Baby Bumblebee Vocabulary Builder DVD’s. Search http://www.babybumblebee.com

Baby’s First Library. We have ABC, Words, Numbers, Animals, Food, Vroom and School. They are available at Amazon, and are great because each page has one large picture with the word written underneath. We have had these books for years and have certainly stood the test of time. I have put his name stickers over the ‘Baby’s First Library’ title, as I don’t want him to feel anything other than pride, but these books as therapy and a teaching tool are fantastic.
Find them here : http://www.amazon.com/s/ref=nb_sb_noss_1?url=search-alias%3Dstripbooks&field-keywords=babys+first+library&rh=n%3A283155%2Ck%3Ababys+first+library

The app, ‘Emotion Fonts’ is available on iTunes for $1.29. We would have loved to be able to make the app available for free, but building an app is quite an expensive exercise, and we have not allowed any advertising on the app, so as to keep it simple.
Find it here : https://itunes.apple.com/au/app/emotionfonts/id779305002?mt=8

Just to finish, I want you to know that Fraser is 11 years old. We never thought he would be able to do this, and he has. His paediatrician was blown away by the fact that he can do this. When I told him about at our last appointment he said “you know, if you had have asked me if I thought Fraser would be able to type, I would have said the chances aren’t good, but we should obviously never underestimate these kids’. It’s so true. You just never know what is going on in those minds of theirs (what we wouldn’t give to know)! It doesn’t matter how young or old your child is. It doesn’t matter if they have Autism and Intellectual Disability like Fraser, or just one or just the other. It’s worth a try. Our hope for the future, is that this new skill will build and he will be able to tell us the things he is feeling. For years I have asked one question, over and over, and I hope one day, if he can’t tell me what it is, he can type it. Hopefully soon when I again ask him ‘what’s your favourite colour’?, he’ll type me the answer. When I find out, i’ll let you know 🙂 I truly wish you all the best. Don’t hesitate to leave a comment and let me know any success stories. I’d love to hear them.

Kitty
xx

Never, Ever, Ever, Underestimate a Who

In my last post, we discovered how I came to be ‘Horton’, so now it’s time for an update on my ‘Who’.

Something extraordinary is happening in our house at the moment.  Something unexpected. Something brilliant!  It all started in January, and I would not have dreamed that in only five short months,  things could be progressing as they are.

When Fraser was about five months old, I knew something was off kilter.  I watched and hoped I was wrong.  I heard it all from others as well as from my own head. ‘He’s a boy, they’re different to girls’, ‘he’s just laid back’, ‘he’ll get there’, ‘stop worrying’!  Oh how I wanted to believe it was so, but he didn’t point, he didn’t have eye contact and he didn’t respond to his name,  so at about 14 months I started to Google Autism.  I didn’t really have much of an Autism reference point apart from Rain Man, so I got  familiar with the main symptoms fairly quickly. After researching for a while, there seemed to be standard symptoms that we started to expect and he had more than enough for a diagnosis, but after attending a class for parents of Autistic children, I was struck by how different Fraser was to the other boys.  They talked about how they had melt downs if their routines were interrupted, Fraser wasn’t like that at all, in fact he was incredibly laid back, and if he did have a tantrum, it never lasted longer than a few minutes. The other boys weren’t affectionate, whereas Fraser was incredibly affectionate and still is.  I was actually told around this time that as he gets older he won’t hug me…’it will be like hugging a sack of potatoes’.  Nice!  The other boys were obsessed with trains and Thomas the Tank Engine. The older ones were obsessed with train time tables and maps, and most of them liked to line things up.  They were all obsessed with numbers. Fraser showed no interest in any such thing.  Even as time has passed, he never developed much of an interest in numbers. He learned to count, but it never really progressed beyond that.

Enter January 2014.  During the summer holidays, Fraser had some times when his frustration levels were through the roof, mostly because he couldn’t communicate with us what he was wanting looked up on the computer.  He would sit us down and gesture with his hand that he wanted something typed in but couldn’t tell us what.  Every time we suggested something we thought it might be, he got more and more frustrated.  It broke both of our hearts, because, I couldn’t blame him one bit.  I can’t begin to imagine being in a human body, living in a human world where communication is everything, but missing one of the most human traits all…the ability to speak and understand language.  It is so very cruel. So one day, I decided to teach him to type.  I had seen and heard of many instances such as the inspiring Carly Fleishman, and figured there was nothing to lose.  I had actually made an attempt a few years before by locking the computer and making his name the password.  It worked. He learned to type his name and unlock the computer, to be able to watch his movies, but he just wasn’t into it beyond that.  This year was different though. I think he needed to get almost to the point of desperation for him to see the benefit of learning to type.  So the first thing he learned to type was ‘Toy Story’ and after being shown it a few times, he picked it up really quickly.  The look of sheer delight at his accomplishment was one of the most beautiful things I have ever seen.  His whole body was electrified with excitement as he could see this world of opportunity opening up before him.  After that, he developed an insatiable appetite for spelling and the alphabet.  It got to the point where we had to put his books away at night, because he couldn’t get enough.  One night I got out a number book, just to break things up a bit, but he wanted to know how to spell the numbers!  O-n-e, t-w-o. You get the idea. I made him up a dictionary of common words that he likes to look up and he looks at it every day.

The other day, my sister was over, so I did that thing that proud parents do, which is pretty much treat your child like a performing monkey.  I asked him to spell his name out loud.  He got to F-r-a and forgot the rest. I tried to encourage him but he yelled ‘all finished’ and ran off looking embarrassed.  I hadn’t really seen this before, so we followed him to his room to see if he was okay.  He was.  In fact, he was laying on his bed with his dictionary studying his name!  He then turned around and spelled it correctly, looking as proud as punch. What a moment that was!

Later that day, as I was putting him to bed, he was playing some music on his CD player which he does everyday, but tonight, he was listening to the beautiful song ‘Hands’ by Jewel.  He was listening to it over and over again (of course).  It just couldn’t have been more apt.

If I could tell the world just one thing
It would be that we’re all OK
And not to worry ’cause worry is wasteful
And useless in times like these
I won’t be made useless
I won’t be idle with despair
I will gather myself around my faith
For light does the darkness most fear
My hands are small, I know
But they’re not yours, they are my own,
But they’re not yours, they are my own
And I am never broken

It was just such an incredible moment listening to the song that he has chosen.  From a boy who is using his hands to speak, it was a perfect fit.  The autistic boy, with no particular interest in numbers, has a love of letters.  THANKYOU UNIVERSE!!!  He knows all of his letters, he can spell, he can tell us words when we point to them and ask him what they are. He is getting there! Sometimes on this journey, Autism can be your friend, and those obsessions can lead to something incredibly beneficial.   As I said at the beginning, never, ever, ever, underestimate a Who.

There is a lot more to this Who than meets the eye, and I couldn’t be more chuffed.

Kitty xx